We were told today that Kali's next surgery is going to happen on Friday- she will be exactly 3 weeks old that day. This is exciting and scary at the same time. Her recovery last time was rough to say the least! The neonatologist fellow (a doctor who is working at specializing in neonatology) is hoping that since the duct in her heart that they had kept open after she was born, which was open for her first surgery and most of that recovery time, is now closed that we won't see the same rough recovery she had before. It won't be easy but we are hoping that it won't be as bad or as scary.
The nurse I talked to this evening doesn't think they will take her chest tube out before surgery, which means we can't hold her until after this recovery. This news broke my heart. I have been looking forward to holding her since day one and then I thought it would be today and now who knows when!
I can't even begin to explain how unnatural this whole situation is. First, to be sitting here no longer pregnant when I should have a little over 7 more weeks to go, then to have my tiny fragile baby in the care of strangers, also having to agree to allow people to do things to her that put her life at risk, and to have to sit there and stare at your baby and not be able to pick her up and cuddle her. It is just not the way it is supposed to go. I feel so helpless.
But in the end, my little girl is still fighting strong. She had a great day today and was very very active and bright eyed. It was great! I made a little video on my digital camera for Darrin to be able to see her move and act like a baby. He loved it, Riss did too.
We don't know what time she will be having surgery on Friday but I will update as soon as I know! Keep praying!