New Levels of Frustration

Last evening was a little rough for Kali. While we were visiting,Mike and I noticed some weird things on her ventilator. When the lines on the vent changed Kali's heart rate would slowly start going down and her oxygen level would drop quickly. The nurses were easily able to get her back where she needed to be but these little "episodes" would keep happening. Finally, after what seemed like forever, the resident ordered the necessary ventilator changes and she was back to her normal little self again.
She did well over night and all day today. So far tonight she is doing very well. They have her feeding tube working like it should and she is able to get little feedings every 6 hours. She was awake most of the day and active like she usually is. Best of all, I got to hold her again. This time I held her for almost a full half hour!
Towards the end of our visit this evening the attending doctor came over to us to update on everything that is going on with her. She is going for a special test tomorrow to check the function of her gallbladder to see if they can figure out why she is so jaundice.
He also told us that he is concerned about her kidneys. The blood levels that show how well the kidneys are functioning are elevated. Again they are confused (she is so good at confusing these people). It is confusing because she is peeing very well, she isn't swollen, and she isn't showing any other signs of kidney issues. Tonight's blood work showed a little bit of an improvement of her kidney function. Please pray that the improvement continues!
In some better news, she has gained some weight again! She is now up to 3 pounds and 4.6 ounces!
This little one sure is taking us for the wildest roller coaster ride of our lives!