For the love of it all! This morning I called to check on our little Kali and was told that her head circumference increased one full centimeter in four hours (the doc told me her head should only increase in size by 1/2 a centimeter a week). This means she developed hydrocephalus. So they repeated the head ultrasound, which the official results are not back yet, and consulted neurosurgery.
The doctor told me that the quick peek he took with the ultrasound showed some brain damage. He said it is not a devastating amount and we will not know how it will effect her at this point. We (Mike, my self, our family, the doctors, and nurses) are hoping that it does not increase anymore. At this point she still has a fighting chance, but if it gets any worse we do not know what will happen.
I am not sure what neurosurgery's opinion is. They never told us. But we do know that at this point she still moves all limbs freely so that is a good sign. She is also able to swallow and sucks on her breathing tube. Hopefully she maintains these abilities.
We are still continuing on with our plan to give her every treatment that she needs to survive. As the doctor told us, she has a lot of small things that are very fixable (except for the brain damage). He is very supportive of us continuing with all of her care.
In all of my years of working in health care, I have rarely seen a doctor cry with his patients or their family. In the past two days I have had two different doctors tear up as they talked with us about our daughter. None of us can believe the cards this little angel has been dealt. We are hoping the hurdles stop coming and she is able to overcome the ones that have already been set up in her path.
We would like to thank you all for your prayers and good thoughts for our baby girl. Please keep them coming!
I posted on Yuku, but I truly am praying so hard for Kali.
ReplyDelete--Carrie
Praying hard.
ReplyDelete~ Jillian